Mayo Clinic Eh

Well, I have not been as good at updating as I should have been... sorry. It has been crazy busy here from the start. Lets see we left off on ... Sunday Night...

Monday we got up and went to the local mall (come on, we are in Rochester, not much else to do). We ate at this amazing restaurant called HuHot, and got to make s'mores right at our table. Yes I am easy to please. Really on Monday we just spent time together, ate some really great food for lunch AND dinner and relaxed.

Tuesday we switch hotels (long story) and then headed over to the clinic for my first appointment. (Yay!!)

Mayo Clinic is really amazing, they have this system down. We checked in and did all of their paperwork and then went up to the Neuro Floor. They are seriously efficient, and on time. When I went into the appointment it was nice because the Neuro was the one that actually met with me, and talked about my concerns. She was really great, and didn't give me any sort of "false hope". She was clear that we may not walk away with a diagnosis, but we would walk away with more answers and less possibilities. After our consultation she set up a number of tests to be preformed, and then we will meet with her again Friday morning to decide where we go from here. So part of the problem is that means... I get no answers until Friday. haha.

Today I had an appointment with a Neuro-Opthomologist, who didn't say much except "Yup a case of optic neuritis, good thing is the nerves aren't dead, they still have color so there is hope of the vision coming back". Ohhh really sir, so you are saying that yes, there is an issue and I am not just being an emotional woman and making this up? Can I get that in writing for my lawsuit? Thank You!! Haha

Then I had an MRI. The Neuro told me the MRI would be longer than I was used to because she was concerned that they had not looked into some things that she would like to rule out (i.e. she is concerned it might be a blood clot in the vessel behind my eye which is causing the vision loss, and would also cause the weakness on the left side, because I would have had a stroke...Um how come no one else has ever mentioned this?!) Well when she mentioned it would last longer I didn't realize she meant 2 hours! Man oh man that is a long time to be in the machine.

Tomorrow I am going to enjoy some nice Holiday Inn Express breakfast and then I have a visual evoked potential test (to see if my eye is receiving signals) and a sensory evoked potential test (to see if my limbs are receiving signals and are just weak, or they are not receiving the signal at all.)

And then the dreaded... Lumbar Puncture. BOO. :(

Friday I have a visual field test, a physical therapy session and a meeting with my neruo. It's all none stop. I am tired. But it is good good to be taken seriously.

I am sorry I have no updated you all sooner!! I will post some picture soon. Feel free to email or call me!